If you are eligible and would like to participate, you will be asked to:
- Provide your consent (a requirement for participation in any research study)
- Give the registry permission to contact your healthcare provider(s) to collect information for the study
You and your healthcare provider(s) will provide information to the registry about your pregnancy and your baby’s health up to 1 year of age. This information can be provided by completing paper forms, via the free registry app, via the website portal or via short phone interviews with one of the registry staff members. Only information normally documented in your medical record will be collected.
If you participate, there will be:
- No extra doctor’s visits or additional testing
- No changes to your existing healthcare provider(s) or care
You and your healthcare provider(s) will receive compensation for providing data to the registry.